Action for A-T
Thursday 27 June 2013 | 12:09am
Action for A-T, Scott Lister Participation
Stephen Laurie from our London office took part in the Olympic Triathlon at Hever Castle, part of the UK’s Castle Series. Stephen was part of a team of 21 who combined raised over £60,000 for Action for A-T, a charity set up by his good friends Toby & Emily Read, following their daughter Evie’s diagnosis with the brutal childhood disease Ataxia-Telangiectasia (A-T). Since Evie was diagnosed in late 2011, the charity has raised over £500,000 which has been put directly into research to finding a cure.
About Action for A-T
Action for A-T’s mission is simple: To speed up the process of identifying a cure for A-T, or treatments that delay or prevent the disabling effects of this childhood condition. A-T is short for Ataxia-Telangiectasia which is a rare, neurodegenerative and progressive condition that starts in early childhood causing severe disability and premature death. There is currently no cure for it and nothing that can halt its progression. Babies are born ‘normal’ and then slowly, from around the age of 5, start to lose their independence. A wheelchair is needed usually by the age of ten, if not before, and in many cases, a feeding tube by the age of 12. The immune systems of children who suffer from A-T are usually compromised and so they very often do not live beyond their teens, usually dying of either cancer or a severe respiratory infection.
Funding for research into the condition is very limited so Action for A-T has been set up to raise funds that can be put directly into medical research. Your support of this very worthwhile cause would be so appreciated and could make a real difference to the lives of children who suffer from this brutal condition. To donate please visit the Action for A-T website www.actionforat.org